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'It is a complete horror to think he may not be here with us.
'I am so glad we stuck by our guns and, although we did listen to what consultants told us along the way - we decided to do what we wanted to do for our baby.'
The saga began four months into her pregnancy when doctors revealed Kai had a heart condition called hypoplastic aortic arch.
This is where part of the heart is narrow and underdeveloped and requires open surgery after birth.
They were told the condition could worsen and they should consider an immediate termination.
The prognosis worsened on New Year's Eve when tests suggested Kai also had Edwards Syndrome.
Scans had shown clear markers of the condition, a strawberry shaped skull, a low-set jaw and low birth weight.
Sufferers do not survive beyond four months old - if they manage to survive to birth - and consultants again urged the couple to consider a termination.
Mrs Purdy said: 'We never once considered we could go through an abortion. It was never even an option for us.'